Gabriel’s Story
Who is this surprising little 17-year-old? Gabriel was, is and above all is curious!
Ring Chromosome 20 Syndrome or r(20) syndrome, is an ultra-rare disease the main symptoms being difficult to treat epilepsy, cognitive decline and behaviour disorder.
Who is this surprising little 17-year-old? Gabriel was, is and above all is curious!
Jaevin’s epilepsy has gotten worse over the years. He has been induced in several comas every year since 2015 n the ICU for status epilepticus for several days at a time until the neuro team found a concoction of medication that would calm his seizures down.
It just didn’t make sense, the constant tiredness, being lost in school, the pauses when she talked. I had never seen anything like that.
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